Working together to improve the lives of people with brain impairment
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Dear ASSBI colleagues,
There are a lot of your colleagues out there wanting your help, have a look and see if you can help out. WFNR have also announced that the Franz Gerstenbrand Award 2020 is now open for entries worldwide. Deadline for entries is now 31st December.
Seeking speech pathologists perspectives on the important issues that matter for successful NDIS funding for people with ABI and communication disability Hi colleagues Given the high profile issues occurring around the NDIS in media and government circles, our team (see below led my Emma Power) are keen to get clinician’s perspectives on the important issues that matter for successful NDIS funding for people with ABI and communication disability (for now and also the future!). The information sheet and consent are attached. Who is doing this research: Ms Anna Parker (speech pathology student at UTS) with academic supervisors, Associate Professor Emma Power, Ms Melissa Miao and Dr Brooke Ryan (speech pathology, UTS). Who can participate: Speech pathologists who have had at least 6 months experience working with adults who have an Acquired Brain Injury (e.g., stroke, traumatic brain injury, multiple sclerosis etc) in the NDIS system. What will it involve: Join an online focus group discussion with other speech pathologists, if we can find a time to suit, if not, a 1:1 interview. Why? The NDIS is critically important to people with ABI and a lot has been happening! Speech pathologists are needed to join a focus group about NDIS services and assessments for people with ABI. What works? What are the issues now and into the future that we need to know about? Please contact: Emma.power@uts.edu.au if you are interested in participating or have any questions! |
3Bridges/icare Foundation Inclusive Volunteering Program Hi everyone, Here is a snapshot of the program: The participants have an acquired or traumatic brain injury, we assist them in finding a volunteer role based on their goals, likes and skillset. The participant is matched with a buddy who is a volunteer who has received relevant training to support the volunteer. The buddy is there to support and walk alongside them in their journey. We then find a suitable host organisation to host the volunteer and buddy for the length of the program. This is generally once a week for a few hours, for 12 weeks. We are currently looking for new referrals of people living with a brain injury who are looking to engage in their community through volunteering. We would welcome any referrals or enquiries from your team in regard to clients living with a brain injury. Please let me know if you have any questions about the program, and feel free to share this information with any friends, colleagues, or clients who may be interested in participating as either a volunteer, buddy or host organisation. Please see the below for more information
Criteria for Inclusive Volunteering Program Participants Inclusive Volunteering iCare Host Organisations Inclusive Volunteer Intake form Have a lovely day! All the best, Kristen McCormack |
New website for ABI Communication Lab at The University of Sydney Hi everyone,
Rachael Rietdijk rachael.rietdijk@sydney.edu.au |
Survey of rehabilitation professionals' experiences of social media use after acquired brain injury (ABI) Dr Melissa Brunner and Prof Leanne Togher are conducting a survey and are interested in hearing from health professionals who work with people in rehabilitation after ABI, who are willing to take part in research about the use of social media. This survey specifically aims to determine: • How social media is used during rehabilitation after ABI; • Any problems people with ABI experience in using social media; • Barriers and facilitators to using social media in ABI rehabilitation; and • The role of health professionals in supporting the use of social media in ABI rehabilitation. The survey will take approximately 30 minutes to complete and will provide information about the current and future scope of practice with regards to using social media after an ABI, as well as the enablers and barriers to supporting people in its use. Findings from this research will further inform rehabilitation pathways, including the design and development of online tools and resources, to support people with ABI in their use of social media as a form of communication, and to provide guidance for rehabilitation professionals in clinical practice. The participant information statement and consent form are available by Clicking Here Please contact Melissa if you have any questions about the study. Ethics Approval/Reference Number: 2020/510 Contact Name: Melissa Brunner |
Have you ever wondered whether older adults’ performance on cognitive testing reflects their actual abilities? Dear ASSBI members, My name is Giverny Parker and I am completing a PhD in Clinical Psychology at Griffith University, under the supervision of Professor Tamara Ownsworth. My research seeks to understand the various factors that might contribute to older adults’ performance on cognitive tests and practices which may help to facilitate their optimal performance. Such insights may contribute to practice recommendations for health professionals conducting cognitive assessments with older adults. To help us achieve this important objective, please consider participating in a 15-minute survey on your perceptions and practices regarding cognitive assessment of older adults. Any health professional with experience in conducting cognitive assessments with older adults is eligible to participate. The study has received ethical clearance by Griffith University’s Human Research Ethics Committee (GU HREC Ref No: 2020/636). Participation is voluntary and your responses will be anonymous. You will be invited to enter a random prize draw to win 1 of 5 x $50 Amazon.com.au eGift Cards.If you are interested in learning more and taking part, please Click Here. Thank you for your time. Yours sincerely, Giverny Parker Psychologist and HDR Candidate – Doctor of Philosophy (Clinical Psychology) School of Applied Psychology, Griffith University Mt Gravatt, Australia Email: giverny.parker@griffithuni.edu.au |
Co-designed CyberAbility Training While cyberscams can happen to anyone, people with ABI may be more at risk, particularly of romance scams. From the stories of people with ABI, their family members and clinicians, the need for tailored cyber safety training was strongly endorsed.The CyberABIlity team (Monash University, Li-Ve Tasmania) in collaboration with people with lived experience of scams and brain injury have developed an online cybersafety program tailored for people with ABI, funded by the TAC. Eight self-directed online modules and workbook activities explore the most important aspects of recognising scams and staying safe online. We are launching the CyberABIlity web-based training in Melbourne in October. People with lived experience of brain injury, family members, carers, advocates, therapists, service providers and funders are invited to attend the launch. There will be an opportunity for attendees to get hands-on support in accessing the web platform and the training modules, completing a personalised cybersafety plan, and self-evaluating their online safety skills. The date for the launch will be announced soon. To stay up to date with our project, please register your interest at www.cyberability.org.au. Promoting this to your clients and networks would also be appreciated.
You can also follow Dr Kate Gould on twitter: @THINKFULLY_ and follow our hashtag #CyberAbility |
Recruiting for CREST Concussion Study
The Neurotrauma team at Curtin University and the Perron Institute, led by Professor Lindy Fitzgerald, are currently recruiting participants for an exciting new study on concussion- the CREST Concussion REcovery STudy. This study is the largest of its kind in Western Australia and involves a range of techniques that are at the forefront of concussion research.
The aim of the study is to identify factors which may predict individuals at increased risk of delayed recovery following concussion to better manage treatment and improve recovery.
Within the past 7 days have you sustained a concussion injury from any cause (e.g. falls, transport accidents, sports-related concussions), been diagnosed by a medical doctor and aged between 18-65 years?
For more information or to see if you are eligible, please email concussionstudy@curtin.edu.au or phone 0466 526 849.
Speech pathology for adults following traumatic brain injury (TBI) Our research team are exploring the lived experiences of adults
when receiving speech pathology services in community settings (e.g.
community-rehabilitation services, day hospital, private practice). The
study is open to adults following TBI and/or their significant others who
received services in Australia or New Zealand and involves a one hour interview
using video conferencing. All participants can go into a draw to win a $50
Coles/Myer or Farmers voucher. |
Light Therapy for ABI Study We are currently seeking referrals for a randomised controlled trial evaluating the impact of in-home light therapy on post-brain injury fatigue, as well as daytime sleepiness, sleep quality and mood. The study entails 7 study visits over a 5-6 month period in the participant's home and exposure to a tailored light therapy program. Ceiling lights and lamps are installed by a certified electrician, using participant's pre-existing fixtures. It is for adults aged 18+ who:
The study has been developed at Monash University in conjunction with the Monash-Epworth Rehabilitation Research Centre (MERRC) by Professors Jennie Ponsford, Shantha Rajaratnam, Steven Lockley and myself. The project has been approved by the Epworth HealthCare Human Research Ethics Committee. If you would like any further information or would like to refer a potential participant, please don’t hesitate to contact me at laura.connolly@monash.edu or 0419 372 468. Download the flyer here |
Monash University is seeking the views and experience of health practitioners who have treated and supported individuals recovering from major trauma injury.
If you are a practitioner who has helped at least one person to ‘get back on track’ after a major trauma injury, we’d like you to complete a 15-minute online survey about your experience. The survey is completed anonymously, and will ask you questions about:
How do you participate?
To go to the survey, follow the link: http://tiny.cc/yc1jdz To complete the survey by telephone, call (03) 9902 0272 when ready, or email injury.ruralresearch@monash.edu to arrange a time for call-back. The project has been approved by the Monash University Human Research Ethics Committee (MUHREC). Project ID number: 18016.
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